define('DISABLE_WP_CRON', true);{"id":4624,"date":"2012-10-16T15:53:19","date_gmt":"2012-10-16T05:53:19","guid":{"rendered":"http:\/\/sh1ft.org\/blog\/?p=4624"},"modified":"2012-10-16T15:53:19","modified_gmt":"2012-10-16T05:53:19","slug":"the-new-normal","status":"publish","type":"post","link":"http:\/\/sh1ft.org\/blog\/4624\/","title":{"rendered":"the new normal"},"content":{"rendered":"<p>when you start a family, you have this preconceived notion of what life is going to be like. i admit that i&#8217;d never really thought about having a child with special needs, you never think that it would happen to you and your child. i think alot of people are still really really scared about the idea of raising a child with a genetic disorder, there&#8217;s this huge stigma attached to these kids that they&#8217;re &#8220;doomed&#8221; and you&#8217;ll be ushered away to live your life in a corner somewhere. <\/p>\n<p>but i want to write this to let you know that today <strong>we are doing okay<\/strong>. <\/p>\n<p><img loading=\"lazy\" decoding=\"async\" src=\"http:\/\/distilleryimage6.s3.amazonaws.com\/cca689160b8f11e2bbd822000a1d03a9_7.jpg\" width=\"480\" height=\"480\"\/><\/p>\n<p>when you are given a diagnosis like Rett Syndrome, the grieving period never ends. it&#8217;s what they call &#8216;chronic sadness&#8217;. eventually you find your new normal (living with this chronic sadness), and you go with it. <\/p>\n<p>so while it might not be &#8216;ideal&#8217; to be sourcing for paediatric wheelchairs, testing out the newest range of one-way straws, deciding the best way to manage seizures, checking that your child hasn&#8217;t passed out and checking whether you can fit an eye-gaze board into your handbag &#8211; there&#8217;s still a tonne of good to be experienced in this world and when it&#8217;s good, it&#8217;s REALLY GOOD. <\/p>\n<p><img loading=\"lazy\" decoding=\"async\" src=\"http:\/\/distilleryimage10.s3.amazonaws.com\/ce7c6f8a174211e2ada322000a1fbcdb_7.jpg\" width=\"480\" height=\"480\"\/><\/p>\n","protected":false},"excerpt":{"rendered":"<p>when you start a family, you have this preconceived notion of what life is going to be like. i admit that i&#8217;d never really thought about having a child with special needs, you never think that it would happen to you and your child. i think alot of people are still really really scared about [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[30],"tags":[],"class_list":["post-4624","post","type-post","status-publish","format-standard","hentry","category-rett-syndrome"],"_links":{"self":[{"href":"http:\/\/sh1ft.org\/blog\/wp-json\/wp\/v2\/posts\/4624","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/sh1ft.org\/blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/sh1ft.org\/blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/sh1ft.org\/blog\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"http:\/\/sh1ft.org\/blog\/wp-json\/wp\/v2\/comments?post=4624"}],"version-history":[{"count":5,"href":"http:\/\/sh1ft.org\/blog\/wp-json\/wp\/v2\/posts\/4624\/revisions"}],"predecessor-version":[{"id":4629,"href":"http:\/\/sh1ft.org\/blog\/wp-json\/wp\/v2\/posts\/4624\/revisions\/4629"}],"wp:attachment":[{"href":"http:\/\/sh1ft.org\/blog\/wp-json\/wp\/v2\/media?parent=4624"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/sh1ft.org\/blog\/wp-json\/wp\/v2\/categories?post=4624"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/sh1ft.org\/blog\/wp-json\/wp\/v2\/tags?post=4624"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}