define('DISABLE_WP_CRON', true);{"id":4862,"date":"2013-05-31T09:26:55","date_gmt":"2013-05-30T23:26:55","guid":{"rendered":"http:\/\/sh1ft.org\/blog\/?p=4862"},"modified":"2013-05-31T09:29:29","modified_gmt":"2013-05-30T23:29:29","slug":"rett-syndrome-awareness-everyday","status":"publish","type":"post","link":"http:\/\/sh1ft.org\/blog\/4862\/","title":{"rendered":"Rett Syndrome Awareness, everyday"},"content":{"rendered":"<p>It happens alot, each time actually. <\/p>\n<p>&#8220;Oh but she looks so normal!&#8221; <\/p>\n<p>It&#8217;s part of the campaign to educate people about Rett Syndrome, and possibly other disorders and situations too. You just don&#8217;t know what someone is going through, what they live with, what they&#8217;re born with. <\/p>\n<p>I don&#8217;t take offence to it, because people don&#8217;t mean it or know what they&#8217;re saying. But I use it as an opportunity to tell them about Jovie, get them to meet her and to go away with a little bit more knowledge about Rett Syndrome. <\/p>\n<p>It&#8217;s harder when I&#8217;m at school picking up Jasper, and people will immediately compare their 4 year old with my 4 year old. Instead of making them feel bad, I want them to know that while we have our challenges, we&#8217;re doing okay and not to feel bad for us. Life isn&#8217;t about comparison (comparison <em>is <\/em>the thief of joy), but I would just want people to know that families like us exist. <\/p>\n<p><img loading=\"lazy\" decoding=\"async\" src=\"http:\/\/distilleryimage5.s3.amazonaws.com\/fa71c7b0bcf711e2a2d522000a1fb04d_7.jpg\" width=\"480\" height=\"480\"\/><\/p>\n<p>we love, like you love.<br \/>\nwe live, like you live.<br \/>\ndon&#8217;t be afraid to say hello and ask questions. be gentle with it, and we&#8217;ll be gentle with you \ud83d\ude09 <\/p>\n","protected":false},"excerpt":{"rendered":"<p>It happens alot, each time actually. &#8220;Oh but she looks so normal!&#8221; It&#8217;s part of the campaign to educate people about Rett Syndrome, and possibly other disorders and situations too. You just don&#8217;t know what someone is going through, what they live with, what they&#8217;re born with. I don&#8217;t take offence to it, because people [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[30],"tags":[],"class_list":["post-4862","post","type-post","status-publish","format-standard","hentry","category-rett-syndrome"],"_links":{"self":[{"href":"http:\/\/sh1ft.org\/blog\/wp-json\/wp\/v2\/posts\/4862","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/sh1ft.org\/blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/sh1ft.org\/blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/sh1ft.org\/blog\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"http:\/\/sh1ft.org\/blog\/wp-json\/wp\/v2\/comments?post=4862"}],"version-history":[{"count":3,"href":"http:\/\/sh1ft.org\/blog\/wp-json\/wp\/v2\/posts\/4862\/revisions"}],"predecessor-version":[{"id":4864,"href":"http:\/\/sh1ft.org\/blog\/wp-json\/wp\/v2\/posts\/4862\/revisions\/4864"}],"wp:attachment":[{"href":"http:\/\/sh1ft.org\/blog\/wp-json\/wp\/v2\/media?parent=4862"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/sh1ft.org\/blog\/wp-json\/wp\/v2\/categories?post=4862"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/sh1ft.org\/blog\/wp-json\/wp\/v2\/tags?post=4862"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}