define('DISABLE_WP_CRON', true); _sh1ft.org » a bump in the road

a bump in the road

life is never easy, you have to earn your stripes.

yesterday in the mail, came a suspciously thin letter for me from Centrelink. it was a 1 page rejection letter to notify me that i don’t qualify to be Jovie’s carer. that i don’t provide the level of care required for the title.

it’s not the money that i’m only worried about, of course it would help out so much while i’m not working (and not being paid), but the slap in the face is that someone in an office somewhere judges whether you care for your Autistic child enough or not, and they have decided that i don’t do enough.

there are a few ways i can react to this – oh, there’s definate anger and confusion (the first rejection was because i work more than 25 hours a week but I don’t right now, and i corrected them but then they still reject the application? what. ). but i’m working on living a positive life and moving forward. i can’t be controlled by disagreements. i won’t be controlled by anger.

i will most probably ask them to review the application, again, but not after we start therapy (in less than 2 week now! yay!) and get a schedule going again.

but in the meantime, i still have dreams and passions that i want to pursue. i’m looking at changing careers and developing other side projects that i’ve had in my heart for a while. anything that keeps me in Jovie’s loop will do.

around the time of Jovie’s autism diagnosis in September, i read somewhere that now you have to be ready to fight for your child. i didn’t really know what that meant, but i’m slowly understanding. there’s going to be more rejections in the future, we will run out of funding and we might never take that family trip back to the States that we want to do in the next 2 years – but my goodness, i’ll fight it out for my children. whatever it takes to move our lives forward & upward.

This entry was posted is filed under autism, jovie. Both comments and pings are currently closed.

Lisa JayNovember 13th, 2011 at 9:12 am

Hi Tracey, I can’t believe this happened to you. How frustrating for you. I love your passion to pursue ‘anythingthing that keeps you in Jovie’s loop’. You’re a great mummy, blessed with a beautiful family. Stay strong.