
starting some therapeutic brushing and joint compression, every 2 hours during waking hours
our family meeting with our OT, Grace, today which meant cramming 4 adults and 2 kids into the smallest meeting room ever. which in turn meant a total meltdown for Jovie.
whether it was the room size, the lack of books (her favourite and only thing she’ll ‘play’ with), her tiredness, her hungriness, her concentration span, the brightness, the noise, the sitting down, the memories of being there the last time – Jovie just wasn’t having it and Regan had to escape the entire building without looking like he was kidnapping some poor kid..
she’s been like that lately – sleeping well but sleeping alot, bawling her eyes out for no reason, not wanting to eat but will drink and drink – but that’s what it’s like to live with Autism – the day is never predictable, and sometimes it’s so hard to just get 1 thing done without someone crying.
but you dig deep, you plan ahead and you go with wherever it takes you. if you don’t, it will take over you and all that will be left is someone you used to know, screaming in the corner with 2 freaked out kids.
