define('DISABLE_WP_CRON', true); _sh1ft.org » Joey Doesn’t Talk Yet aka Siblings Understanding Autism

Joey Doesn’t Talk Yet aka Siblings Understanding Autism

Overheard in the bath tub this morning, the sounds of a 4 year old boy trying to teach his 2 year old sister how to say his name.

‘Say JAS-PAH, Joey’
‘…’
‘Like this, JAS-PAH’
‘…’
‘Joey, say JAS-PAH. Say JAS-PAH!’
‘…’

There are times in your life where you feel proud, and there are times where you feel profoundly sad. This was both for me today at bath time.

Jasper is beginning to understand more and more than Jovie is different to other kids. He’s first to say ‘Joey doesn’t talk yet’ when I talk to Jovie directly. When we drop him at daycare, Jovie likes to roam around the room but he brings her back to me saying she needs to go to ‘baby school’ (e.g. either therapy or her supported playgroups).

There’s glimpses throughout the day where he tries to ‘speak Jovie’ – our ‘home therapy’ includes bubble blowing and he watches me work on Jovie’s joint attention and tries to copy. And like in the bath tub this morning, he’s trying to encourage her to speak.

We tell him that Jovie needs a little more help than other people and that we need to teach her things, that you can always talk to Jovie because she can hear you (though she doesn’t understand). But ultimately we’ve decided he’s still a little young to understand the whole scope of things.

There will always be questions and maybe I won’t have all the answers, but to a 4 year old boy who just wants to play with his sister I don’t think any answer really makes sense.

Parents of kids with Autism – how have you explained Autism to your other kids?

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ballet flatsFebruary 16th, 2012 at 7:42 am

how lucky is Jovie to have such a fantastic big brother. you know for sure that he’s always going to be there for her, to keep protecting and encouraging her…

he seems like such a sensitive, sweet little soul. you should be incredibly proud. of both your kids. 🙂

JoyFebruary 16th, 2012 at 11:49 am

Hi Tracey, I remember moments like these, and I think we used a combination of words and actions, just like you’re doing…we used words to let Dana know what was going on with Charlotte, but she was also closely watching how we interacted with her and that became her *normal*. You are doing a great job and are a wonderful mother to both of your children. –Joy

BiancaFebruary 17th, 2012 at 9:51 am

Awww… Jasper sounds like the most amazing big brother!! And Tracey, you are such an inspiration! I’m almost done with my B. Education (Primary) course and looking forward to being in the classroom. Jasper and Jovie are very lucky that they have so much love surrounding them x

elleMarch 2nd, 2012 at 5:03 am

hmm, I’ve been reading her baby posts and she met all her milestones, normal and healthy, so I’m really surprised she’s diagnosed autistic. now that is puzzling, because ur posts about her being normal etc since birth, hence i’m curious to know what is the cause?? Genetics?

TraceyMarch 2nd, 2012 at 11:19 am

elle, she actually hasn’t met all her milestones – her gross motor is better (e.g. crawling, rolling, sitting up and walking) but is still behind (e.g. she can’t walk upstairs, can’t jump or bounce, can’t kick a ball plus other stuff). she has alot of sensory processing issues, does alot of stimming etc.

we are still doing some genetic testing because of the deletion in her chromosome 10, but they’ve told us they don’t know whether that’s the cause of her delays because there’s not enough info in the world…

what i know is that autism is different for every single person, Jovie is definately unique to her other autistic friends but i trust in the diagnosis that we received and will continue with her therapy unless these tests conclude otherwise 🙂

elleMarch 3rd, 2012 at 1:21 pm

thks for replying, having a healthy kid under one of my own I tend to educate myself by reading about milestones, children’s behaviours and development hence blogs like yours are a good read 🙂

TraceyMarch 5th, 2012 at 9:46 am

no worries, elle 🙂 it’s really nice to have comments, but questions are better – especially when it comes to our kids.