define('DISABLE_WP_CRON', true); _sh1ft.org » Rett Syndrome Video Study
August
27

Rett Syndrome Video Study

I’ve spent the last week and a bit taking video of Jovie on my iPhone for the Rett Syndrome Video Study – something that’s right up my alley as I shoot a billion minutes of video a month, and don’t mind editing together a little video now and then 🙂

All 27 minutes (complete with titles & music, lol) is currently rendering and will be sent off to the Aussie Rett team today – I feel good about doing something to help Rett Syndrome research in Australia!

I just registered teamjovie.com so that will be a dedicated space for Rett Syndrome fundraising and events that I’m involved with, but I’ll still talk about RS and Jovie here

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Fiona • August 27th, 2012 at 1:01 pm

Awesome!!!

And I’m sure the resrearchers will get a kick out of the effort you put into the video. Looking fwd to the team jovie launch!