I’ve spent the last week and a bit taking video of Jovie on my iPhone for the Rett Syndrome Video Study – something that’s right up my alley as I shoot a billion minutes of video a month, and don’t mind editing together a little video now and then

All 27 minutes (complete with titles & music, lol) is currently rendering and will be sent off to the Aussie Rett team today – I feel good about doing something to help Rett Syndrome research in Australia!

I just registered teamjovie.com so that will be a dedicated space for Rett Syndrome fundraising and events that I’m involved with, but I’ll still talk about RS and Jovie here