Jan
04
2013
2013
proud to be married to such an awesome man. we’ve never been happier & 2013 is going to be awesome!
proud to be married to such an awesome man. we’ve never been happier & 2013 is going to be awesome!
This year marked the first Christmas with our Rett Syndrome diagnosis. And it wasn’t half bad at all.
If you visit our house, you will see many toy boxes. They’re all filled with things we’ve bought Jovie because it was ‘age appropriate’. All of them are pretty much brand new and untouched because she never was interested in them – tea sets, xylophone, wibble wobble things, soft toys. I’ve likened it to toy boxes filled with my love and desperation to find Jovie something she would like to play with. I’m my father’s daughter – I do like to buy stuff, but sometimes all that stuff doesn’t cut it.
So it’s the first year that we know what Santa should bring Jovie, it’s the first time where we don’t expect her to be ‘at a certain level’. It means we can forget about what should be, and just have Christmas. I find that really awesome 🙂
Jovie’s first Christmas, 2009
This Christmas, 2012
i’ve been thinking back to the events of the last year, most of it was a blur (in and out of hospitals, doctor’s offices. opening up letters for follow ups, summaries and diagnoses) but it was also filled with alot of gratitude and happiness.
even though we received Jovie’s Rett Syndrome diagnosis in June, i feel like i grieved more in 2011 when we first read about the syndrome and realised how much it matched up to us. being prepared, really pushed me faster to the place of acceptance and moving forward. and i’m grateful for that.
falling pregnant in october was truly a blessing. i also feel like it’s our own way of moving forward with living our lives and giving thanks to all that we have. i certainly am aware of how tough life is with the RS diagnosis, but i don’t think that should stop us from living a full and happy life. it would be a tragedy if we all gave up on happiness because life wasn’t ‘perfect’ all of a sudden. who wants to be perfect anyway?
if i’ve learnt anything in the last 12 months, it’s to never give up on anything that means something to you. whether it’s family. friends. career. hobbies. it/they will always enrich your lives, if you make the effort.
so here’s to a blurry but interesting 2012, and to an even more interesting 2013!