we were lucky enough to get a call from our paediatrican today, there was a last minute appointment available so we could come in today instead of waiting until next week, hooray!
the news? EEG, blood, urine, hearing and eye tests – all clear, no problems which is great! but still, there is still the issue of what is going on, so we’re booked in for a brain MRI in about 4 weeks time at the hospital, and then about 4 weeks after that is our appointment at the Children’s Development Unit at Westmead. then 4 weeks after that, we ‘should’ have a diagnosis. (again unofficially, he’s said that it’s looking like autism on the more severe side of things but unofficial diagnosis’ doesn’t get us anywhere officially).
so give me 3 months, i might not have any hair left from the stress, but we should have something to go with. should.
‘should’ is a really tough word to use/take when it comes to your children’s development
i’ll be honest and say it’s been a bit of a struggle to wait the 2 months to get here, but in reality this diagnostics stage may take longer than the next 3 months we have scheduled already. i have to find my patience, and i need to dig deep which is hard when all my thoughts are with getting Jovie (and us) the help she needs. every day i feel like just throwing everything to the side to just concentrate on her, but in the meantime there’s bills to pay and responsibilities not only as a parent, but as an adult to not give up when the going gets tough.
so we wait. somewhere in between.
