define('DISABLE_WP_CRON', true); _sh1ft.org » And my heart skips a beat..

And my heart skips a beat..

I don’t often talk about nightmares I’ve had – but maybe I should of posted something earlier so you’d feel how freaked out I am right now (two-fold).

So the doctor who diagnosed Jovie with Autism & Development Delay at the Children’s Hospital has just called. We were expecting an update on her CGH (blood test) that was done to check for Rett’s Syndrome.

For the life of me, I can’t remember exactly what she said – that there is deletions in her DNA or something – but we have to go in for a talk next week and frankly I am going to find it really hard not to stress out until 3:30 on Tuesday.

The only thing I do know is that we love Jovie today, we’ll love her after that appointment. That’s what counts, right?

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ballet flatsJanuary 13th, 2012 at 2:15 pm

yes. love is all that counts. whatever they tell you or whatever the diagnosis is, jovie will still be your daughter. you will still love her and she will still love you. and whatever comes you way in the future, you will get through it together.

c xx

TraceyJanuary 16th, 2012 at 3:09 pm

Thanks Alice, I just saw that video – it’s amazing but at the same time I’m realistic that Carly is an exception. I love that she’s able to tell us how she feels though – she even has a twitter account!!

C & Melissa – thank you xx It is scary but it is whatever it is, isn’t it?