One of my strategies for keeping sane this week, has been to slow down. Slow down my life, slow down my mind, simplify even the simplest things.
Tuesday, Jasper had a speech therapy assessment – mild language & speech delay and he’ll need semi-regular sessions.
Wednesday, I spent half in a procastination coma but managed to put together my new cheapie elliptical, twice, because i put some parts together backwards.
Thursday, I burst into tears infront of the Autism parents group (we’ll have to pull out of there soon. My choice).
Friday, school + therapy + playgroup + force fed by my parents
Saturday, 2 kids + rain induced cabin fever
Sunday was a great place to start my plan for a simple day. Regan is home, no appointments to get to and nothing to confront, there’s no rush to do something or be anyone else but ourselves.
There’s time to bake mini apple pies from whatever is in the pantry.
Time to play dinosaurs in the backyard.
Time to take a swing in the sunshine.
There will be alot of hard work and hard time ahead of us, but there’s also alot of light and alot of love. There’s alot of joy in the simple things that we get to do today, because we can and because we have each other in these moments.
Even before the diagnosis, but especially since, I’m becoming more and more purposeful on how I spend my time. By myself, with my kids and with my family. Making time has never been more important and I’m very aware of how things can change not just because of Rett Syndrome, but also because that’s what life is about. Change. Surprises. And you can either roll with it, or not move forward at all.
