A bit of a belated birthday post…
My dearest baby girl Jovie turned 4 on May 21st, and I couldn’t be prouder of her.
This past year has been strange & good, last year on her 3rd birthday we were still waiting for the DNA results that would eventually diagnose her with Rett Syndrome. There was still alot of ‘what do we do’ moments because nothing had really settled, but a year on I think we have more of an idea of Jovie’s immediate future.
Jovie’s a much happier and settled little girl now, alot of personality and of course so so sweet. Of course Rett will always be present in her life, but I see her shining through all the time. With the baby due any day now, I know she anticipates the new arrival just as much as Jasper does. I cannot wait to see her be a big sister!!
It’s really comforting to see her become more social and affectionate over the past year, not so withdrawn and scared. She’s a brave girl, and I hope to see bloom further and further…
love being an Australian and celebrating this awesome country.
love that my kids get to celebrate alongside (and inside!) of me too.
On the day we received Jovie’s initial diagnosis of Autism and a Global Developmental Delay, we took home a package of pamphlets of services we might be interested in. Some were support playgroups, financial advice and then there was a small brochure for an Autism specific day care centre that was opening near us. The cut off for first applications was in 3 days, so we quickly registered our details and hoped for the best.
After sitting for a family interview, our application was accepted and we were excited! Only problem was… the centre was not built and they had no idea when it would open.
That day, was today! Almost 16 months after we first submitted our details (I can’t believe it’s been that long), Jovie has spent her first day at daycare/school and you better believe I shed some tears, lol.
Alot has changed in the last 16 months (e.g. having the diagnosis of Rett Syndrome instead of Autism), but ultimately we still wanted Jovie to be a 3 year old girl. We still want her to have friends and her own independence, her own schedule and to keep her stimulated. Rett Syndrome doesn’t stop us from wanting what every 3 year old could/would be doing, it just means she needs alot more support throughout the day. (Everything from navigating the room, nappy changes, eating, drinking, sleeping etc). Jovie’s always been taken care of by myself (or my parents if something has come up – like pneumonia, ugh), so leaving her was tough on me but I love the staff there so much and they know her so well that I knew she would be totally ok for a few hours.
Her teachers are all trained therapists, psychologists and early childhood teachers – they all have a background in working with kids with Autism and other special needs – so it’s a very special place for the kids to be. The centre itself is awesome, the outdoor area is amazing and very Jovie-friendly.
We picked her up early because I knew she wouldn’t sleep (and didn’t) and she nodded off as soon as we pulled out of the carpark. Success! Now to repeat once every week until she goes to school….
