This year marked the first Christmas with our Rett Syndrome diagnosis. And it wasn’t half bad at all.
If you visit our house, you will see many toy boxes. They’re all filled with things we’ve bought Jovie because it was ‘age appropriate’. All of them are pretty much brand new and untouched because she never was interested in them – tea sets, xylophone, wibble wobble things, soft toys. I’ve likened it to toy boxes filled with my love and desperation to find Jovie something she would like to play with. I’m my father’s daughter – I do like to buy stuff, but sometimes all that stuff doesn’t cut it.
So it’s the first year that we know what Santa should bring Jovie, it’s the first time where we don’t expect her to be ‘at a certain level’. It means we can forget about what should be, and just have Christmas. I find that really awesome 🙂
Jovie’s first Christmas, 2009
This Christmas, 2012
Wishing you and your family a fantastic holiday season 🙂
We are just waking up on Boxing Day over here, and I have a Christmas hangover… no, not from drinking. From being me on feet most of the day (in the kitchen – the turkey came out amazing!) and spending my first day in 3 months without a nap!
I’m happily eating leftovers for breakfast this morning and will spend the rest of the day with Regan and the kids – just the way it’s supposed to be 🙂
I’m now 14 weeks pregnant and my morning sickness & stomach bug has officially left the building. I am still bone tired most days, but I’m able to function better and act like a regular human. I’ve been really enjoying the last week, getting ready for Christmas. And now we’re on ‘Summer holidays’ (someone tell that to the weather…), will be trying to catch up with friends that I haven’t seen for a little while.
I have a date booked for an amnio (Jan 4, our wedding anniversary …) but I don’t know whether I’ll do it. There are more chances of everything being fine, then not and I’m leaning towards just leaving things be but I’ll talk it over with Regan again. Oi.
My sister Hayley got engaged a few weeks ago and they’re starting to plan and set a date, it’s so exciting! It won’t be for a couple of years, but we’ve (and by that, I mean Hayley and I, lol) already been all over Pinterest to get some inspiration. I love a wedding.
It’s time for me to put my feet up on the couch and play with Jovie – both of the kids had an amazing day yesterday but we know Jovie in particular just loved being around our whole family. It’s such a great time of year! xx
I’m wearing the Celina Tank Maternity Dress by Soon Maternity
bright dark and early yesterday morning, we piled into the car and set off to Sydney Olympic Park for our first Run4Fun event – all in the name of Team Jovie! neither Regan, the kids or myself had ever been in some sort of running event, but they added a 3km fun run/walk this year and I couldn’t resist the chance to 1. exercise, 2. fundraise for Rett Syndrome and 3. do something different.
our walk started at 7am, and we had a great time walking (briskly) the course with our friends around us. Jovie LOVED it, she loves being outdoors, even in a stroller.
Jasper actually had a great time and jogged/ran alot of the way around the 3km course with Regan. I think we have a future runner in the family…. They beat us by about 10 mins, lol.
a sea of amazing people running the 10km
Jogging to the finish line with Aunty Aislin, we’re up on the big screen at ANZ Stadium!
Afterwards we headed off to the amazing Blaxland Riverside Park for some breakfast and a play – if you’re in Sydney you should definately check it out. Get there early because parking is terrible…
We’ve raised $2,245 for Rett Syndrome Research in Australia which is AWESOME (and coincidentally, we would of been the 3rd highest fundraisers for the Run4Fun if they included Rett Syndrome Australia in their list).
Now it’s the next day and we’re totally buggered, thank goodness we had a day off! I think we’ll definately do the run again next year, so stay tuned for that!
