define('DISABLE_WP_CRON', true); _sh1ft.org

Joey Doesn’t Talk Yet aka Siblings Understanding Autism

Overheard in the bath tub this morning, the sounds of a 4 year old boy trying to teach his 2 year old sister how to say his name.

‘Say JAS-PAH, Joey’
‘…’
‘Like this, JAS-PAH’
‘…’
‘Joey, say JAS-PAH. Say JAS-PAH!’
‘…’

There are times in your life where you feel proud, and there are times where you feel profoundly sad. This was both for me today at bath time.

Jasper is beginning to understand more and more than Jovie is different to other kids. He’s first to say ‘Joey doesn’t talk yet’ when I talk to Jovie directly. When we drop him at daycare, Jovie likes to roam around the room but he brings her back to me saying she needs to go to ‘baby school’ (e.g. either therapy or her supported playgroups).

There’s glimpses throughout the day where he tries to ‘speak Jovie’ – our ‘home therapy’ includes bubble blowing and he watches me work on Jovie’s joint attention and tries to copy. And like in the bath tub this morning, he’s trying to encourage her to speak.

We tell him that Jovie needs a little more help than other people and that we need to teach her things, that you can always talk to Jovie because she can hear you (though she doesn’t understand). But ultimately we’ve decided he’s still a little young to understand the whole scope of things.

There will always be questions and maybe I won’t have all the answers, but to a 4 year old boy who just wants to play with his sister I don’t think any answer really makes sense.

Parents of kids with Autism – how have you explained Autism to your other kids?

#febphotoaday

I’m taking a break from posting a new photo challenge over at sh1ft.org photographic projects (time to dream up a new challenge!) – and joining in on the #febphotoaday challenge run by Chantelle. I’m pretty much obsessed with Instgram these days so it’s not a challenge to take a photo a day, but to stick to a theme is fun!

Here’s my photos so far





Follow me on instagram – I’m traceytakesphotos 🙂

Comments Off on #febphotoaday

You’re Almost There

A huge thanks for the words of support on my last blog post 🙂 Even though I’ve been off-work for 6 months now, it’s hard to actually make that leap away from a title I held for all those years. Letting that part of my life go is scary and exciting, but so is starting the rest of my life.

It’s already the end of January 2012, 1 month gone already and I feel that I’m making progress slowly.

Decision on work – made.
Commit to a healthier, cleaner lifestyle – done.
Kids are healthy & happy. Regan is awesome.

But there’s always going to be that part of me that is searching for something, and I think that’s the next stage of my life now. While I’m running Jovie over to her next appointment, picking up Jasper from school or pacing the aisles at Woolies for goodness knows what – there is something inside of me that says ‘keep going, you’re almost there’. (And I don’t mean the salsa aisle).

In my 20’s, I studied, had a career, got married and had 2 kids. I’m now in my 30’s and a stay-at-home mum. It’s all I ever wanted – to be home and taking care of my kids and so grateful for that.

But I don’t know whether that will ever satisfy the creative side of me. Do you ever find yourself saying ‘So what’s next?’ and then waiting for an answer? It’s sort of like not using one of your arms – you know it’s there but you don’t know what to use it for. Your other arm is busy, it’s doing great and you’re getting things done but for some reason you can’t pick up the other one.

I love finding inspirational quotes and cheering people on that are moving forward with their creative pursuits. But I think I’ve lost myself and forgotten how important it was/is to me to, to actually act upon opportunity or to make my own mark.

It’s so easy to just lump yourself into a routine and before you know it, years have passed and that side of your brain/heart/mind has gotten fat with neglect. I need to shake it up and get that fire going again…

How do you move forward?
Do you have dreams you’ve never acted upon? Have an arm you don’t use too?

Image Source: weheartit.com via Danelle on Pinterest